Volume 52, Issue 1 p. 123-127

Agreement Between Self-Report of Disease Diagnoses and Medical Record Validation in Disabled Older Women: Factors That Modify Agreement

Crystal F. Simpson MD, MHS

Crystal F. Simpson MD, MHS

From the Center on Aging and Health

Division of Geriatric Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland

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Cynthia M. Boyd MD, MPH

Cynthia M. Boyd MD, MPH

From the Center on Aging and Health

Division of Geriatric Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland

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Michelle C. Carlson PhD

Michelle C. Carlson PhD

From the Center on Aging and Health

Department of Mental Hygiene,

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Michael E. Griswold BS

Michael E. Griswold BS

Department of Biostatistics, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland

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Jack M. Guralnik MD, PhD

Jack M. Guralnik MD, PhD

Epidemiology and Demography Section, Laboratory of Epidemiology, Demography, and Biometry, National Institute on Aging, Baltimore, Maryland.

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Linda P. Fried MD, MPH

Linda P. Fried MD, MPH

From the Center on Aging and Health

Division of Geriatric Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland

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First published: 24 December 2003
Citations: 237
Address correspondence to Crystal Simpson, MD, MHS, Center on Aging and Health, 2024 East Monument Street, Suite 2–700, Baltimore, MD 21205. E-mail: [email protected]

This study was supported by Contracts NO1-AG-1–2112 and T32AG00247 from the National Institute on Aging.

Abstract

Objectives: To determine the agreement between self-report of chronic disease and validated evidence of disease using multiple ascertainment methods and to assess effects of cognition, education, age, and comorbidity.

Design: Cross-sectional analysis.

Setting: Community Baltimore, Maryland.

Participants: One thousand two community-dwelling disabled women aged 65 and older.

Measurements: Kappa statistics were calculated to determine the relationship between self-report of 14 diseases and standardized algorithms. Analyses were stratified using Mini-Mental State Examination score, education, number of chronic diseases, and age.

Results: Kappa was excellent for hip fracture (HF), Parkinson's disease (PD), diabetes mellitus (DM), cancer, stroke, and disc disease (DD); fair to good for angina pectoris, congestive heart failure, and myocardial infarction; and poor for peripheral arterial disease, spinal stenosis, osteoporosis, arthritis, and lung disease. Overall, kappa decreased with decreasing cognition and education, increasing age, and four or more diseases.

Conclusion: In disabled older women, self-report of physician diagnosis of HF, PD, DM, cancer, stroke, and DD appears valid. In general, increasing comorbidity and age and decreasing cognition and education do not reduce validity for diseases where agreement was excellent overall.